I am a mum of a 22 year old  male called  
David. David was diagnosed with XXXXY. I have many, many stories; some  
good, some bad and most are very funny. I am willing to advise anyone  
who has a child with this syndrome but I presume  there aren't too  
many out there. I was informed in 1984 that my David was the 4th child  
to be diagnosed in Australia and there were only 86 in the world. This  
number has most likely escalated since then! Please don't hesitate to  
contact me and either I can advise or maybe someone has a chid older  
and they can give me some info. This is my first time actually writing  
about this topic so I won't write anything too deep before I discover  
that I am actually been heard!  Look forward to some contact, Linda.